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After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to ...
Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...
As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF ...
When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...
For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...
Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...
As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine. As ...
It’s 6 a.m. in 2019, and I’m running through my to-do list for the day: Looking back now, I don’t know how I managed it all. Over the course of five years, I raised one, then two children, managed my ...
The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
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